When Phua Wee Seng’s six-year-old son was diagnosed with a rare genetic disorder, his family had weeks to raise a $100,000 pledge – on top of subsidies – before the treatment could go ahead. For Warren Sheldon Humphries, the burden looks different: $200 a month in essentials and support is temporary. As a new government task force wraps up more than 30 engagement sessions, Andrea Heng and Hairianto Diman find out what real, lasting support for persons with disabilities in Singapore should look like with Phua Wee Seng, Executive Director, Rare Disorders Society & Warren Sheldon Humphries, Learning Partnerships Manager, Blended Concepts and Docent, Enabling Village
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